Ped SIG: Panel on PT Management of Non-Ambulatory Duchenne MD
3/30/20227:00 PM – 8:30 PM
virtual on Zoom
link will be sent on day of event
Register
DESCRIPTION
Part 5 of APTA CT Pediatric SIG's Neuromuscular Series; in a panel format, therapists in a variety of practice settings (specialty clinic, hospital-based outpatient, school-based) join for a case-based discussion of the care of individuals in non-ambulatory phases of Duchenne muscular dystrophy.
OBJECTIVES
Attendees will demonstrate basic understanding of progression of functional decline across late ambulatory and non-ambulatory DMD and three key aspects of overall PT care.
Attendees will be able to describe at least two elements of the PT role in each practice setting – specialty clinic, outpatient care, equipment program, and school-based.
Attendees will be able to describe at least two areas for collaboration between therapists across settings in regard to care of a patient/student in non-ambulatory phase of DMD.
Attendees will be able to name four specialists typically key in providing care for patients/students with DMD.
Will recognize 2018 Lancet guidelines as describing multidisciplinary care in DMD.
PRESENTERS / BIOS
Julie Booth, PT, DPT, PCS, is currently a clinical associate professor and associate director of clinical education in PT at Quinnipiac University with 30 years of experience. Her areas of expertise are pediatrics and clinical education. She chairs the Quinnipiac PT faculty community engagement committee whose goal is to oversee and provide opportunities to develop social responsibility and leadership for Quinnipiac PT students. She is the PT faculty leader for the QU interprofessional trips to Guatemala and Nicaragua, where students are immersed in the culture while learning about health care in another country. Julie is a board certified pediatric clinical specialist who continues to practice in the school setting.
Heather Hill, MPT, works in the Hartford and Farmington satellites of Connecticut Children’s, where she has been an outpatient pediatric therapist for 15 years. She specializes in adaptive equipment and working with children with a variety of diagnoses, including neuromuscular diseases.
Roopa Kulkarni, PT, MSPT, has worked at Connecticut Children's in the Glastonbury satellite location for four years. She has a combined experience of over seven years as a pediatric outpatient therapist treating a wide range of diagnoses including neuromuscular diseases. She has experience with children and young adults with neuromuscular disease in specialty clinic setting, as a member of the multidisciplinary Neuromuscular Clinic at Connecticut Children's.
Kim Hrapchak, MS,PT works at the Glastonbury satellite of Connecticut Children’s, where she has been an outpatient pediatric therapist for 15 years. For the past 4 years, she has been a member of the multidisciplinary team in the Neuromuscular Clinic at CT Children’s, an MDA Care Center. She has experience working with children and young adults with DMD in both the outpatient and specialty clinic setting.
Moderator Christina Rao, PT, PCS, ATP, CPST, is pediatric PT at Yale-New Haven Children’s Hospital. She practiced in acute care in her early career, including Newborn Unit and PICU. She has done some work in early intervention and pediatric home care, and since 2002, has practiced in outpatient care. She treats patients with developmental disabilities across the lifespan, 0-70’s, via direct care, as lead and coordinator for Seating Clinic, and in her roles in the multidisciplinary Neuromuscular, Spina Bifida, and Metabolic Bone Endocrine Clinics. Currently co-Chair of the SIG, she traces her SIG participation back to the 1980’s when the Pediatric Study Group, led by Cecile Dzielinski, met at Newington Children’s Hospital.
